Maria Yeager

Home » Adenomyosis and Endometriosis » I Am A Survivor…And You Can Be One Too!

I Am A Survivor…And You Can Be One Too!

You know, strength is not just physical. Someone can be physically strong but emotionally and mentally weak. I know people who fall in to this category. However, today I am going to talk about emotional and mental strength…something that is not recognized very often. Going through rough times make people beautiful by strengthening their resolve. You know you can rely on these individuals as nothing will bring them down. I have been through it myself, and I have persevered due to the love and help of God. I want you to know that you can persevere as well.

It’s been a while since I have written a blog, and there is good reason for that. I have been dealing with some medical issues again. After receiving some disturbing news yesterday regarding my health, I thought back on everything that I have been through in my life. I truly believe that everything happens for a reason, so I decided to write this blog to let all those who are suffering know that there is always hope.

My health story begins in 1986 when I suddenly came down with an acute case of appendicitis. I was brought into emergency surgery in the middle of the night, and it turned out that my appendix had ruptured. I stayed in the hospital for six days and was told that I was lucky to be alive.

Around 1990, my whole ordeal with adenomyosis began. The severe pain and extremely heavy bleeding lasted for seventeen years before I was finally diagnosed at hysterectomy. You can read my other blogs for more details on my adenomyosis journey.

In 2009, I woke up and was unable to stand as my right leg gave out from underneath me. It turns out that I had a herniated disc in my lower back and a broken vertebrae. This led to my first spinal fusion. Five months after surgery, I learned that two of the screws broke, and I needed a second surgery.

In 2010, I had my second spinal fusion. Sadly, this fusion also failed, and a third surgery was done in 2012.

In between my second and third back surgeries, just by chance, I learned that I had a brain aneurysm. I had no symptoms. The aneurysm was picked up when I had a head CT scan that was needed prior to a CT myelogram for my back. I was stunned! I had surgery, and the doctor placed a coil and stent to block flow to the aneurysm. Thankfully, the aneurysm is now stable.

While recovering from the coil and stent surgery, I found out that my husband was having an affair. I was an emotional wreck as we had been married for almost twenty years. One month before my third back surgery, we separated and he moved out. We are now divorced.

After my third spinal fusion, my left hip began to hurt. I was unable to sleep on my left side at night. This was the beginning of hip bursitis which plagues me to this day. I get occasional cortisone injections to help ease the discomfort.

Although the third surgery resulted in a fusion (yay!), I still live with chronic daily pain in my lower back. The pain still sometimes radiates down my right leg. Not a day goes by now that I’m not is some degree of pain.

In the last year, I began to have severe upper back pain. An MRI showed four bulging discs in my neck along with a couple of pinched nerves. I haven’t had surgery for this yet. I decided to go to a pain management doctor, and I have had many shots – epidural, facet joint, medial branch nerve blocks, etc. These have all given me minimal relief, so my doctor suggested I try radio-frequency. This procedure deadens the nerves that go from the spinal cord to the brain which block the pain signals. I had this procedure done, but it deadened the feeling in the middle of my back while the pain continued in my shoulders and upper neck. I actually am in more pain now than before the procedure. Sigh…

In the meantime, I have had knee, shoulder, and ankle pain, and at times, my knee and hip lock up and give out. Since so many of my joints were hurting, my family doctor suggested I see a rheumatologist. On my first visit with the rheumatologist, they took eight tubes of blood from my arm.

Several weeks later, I had my follow-up. I was shocked to learn that I had a positive ANA test. This test detects autoantibodies which means that there is an autoimmune process of some sort occurring in my body. I couldn’t believe it. So, the doctor ordered more tests, and I had eight more tubes of blood drawn.

Last week, I had yet another follow-up with the rheumatologist. This time, the blood work showed that I had high levels of cardiolipin and beta-2 glycoprotein. This means that I have a clotting disorder! She told me to start taking an aspirin a day for now, and I have to repeat the blood work in several months to see if the levels are still elevated. If they are, I will be diagnosed with antiphospholipid syndrome.

The most shocking thing about antiphospholipid syndrome/high levels of cardiolipin and beta-2 glycoprotein has to do with pregnancy complications. Apparently high levels are associated with a high incidence of miscarriage. While I was married, there were times when I was quite sure I miscarried. Until now, I thought it was a result of adenomyosis, but now I wonder if these high levels played a role also. By the way, I have no children. I wish I had this information thirty years ago! It doesn’t really apply to me now as I have had a hysterectomy. However, these levels put me at an increased risk of stroke or heart attack, so I definitely need to address it, and the rheumatologist needs to keep an eye on it.

My rheumatologist believes that my aches and pains may be due to fibromyalgia, and I have been put on Lyrica. So, for now, I live with chronic pain…pain in my lower back, pain in my upper back, pain in my shoulders, pain in my hip, and sporadic pain in my knees and ankles. I hope the Lyrica will help.

So…I know what it is like to hurt physically. I know what it is like to hurt emotionally. I know. I get it. I’ve been at that place where you think there is no way things are going to work out. I’ve been at that place where I ask God, “Why me?” But I’ve made it this far with God’s help, so I know I will make it in the future. No matter how bad things get, you will make it. Ask God for His hand, and He will guide you. With His help, you can move mountains. Nothing is impossible with God!

 

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