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Until about a year ago, I was totally uninterested in politics – those subjects were my absolute least favorite in school. So, I am surprised that today I watch the news on almost a daily basis. I don’t know what changed. Maybe it’s all the chaos surrounding this administration. But, at age 51, I am finally paying close attention to what is happening in the United States…and I don’t like it one bit.
When Obamacare was passed, I was concerned. At the time, I only watched Fox News and I was a Republican, so you can imagine what I thought at the time. Fox News did bring up many concerns regarding Obamacare …and those concerns were justified as there are serious problems with it that need to be addressed.
When Trump became President, I wasn’t happy at all even though I was a Republican. I lived in a highly narcissistic environment for about twenty years, and I saw the exact behaviors in this man that I saw personally in my own situation. This concerned me greatly. I tried to warn people about this man, but I was attacked on social media for daring to question Trump’s behavior. Since that time, I have watched on a daily basis the chaos in this administration, mostly a direct result of his narcissism. I shake my head in frustration all the time, and I am disgusted with Washington in general. During this time, I contacted my senator, Mark Warner, and my Congresswoman, Barbara Comstock, on several occasions about my concerns. I never thought I would contact a Democrat, but I am so glad I did. Mr. Warner responded every single time I contacted him. I never heard from Barbara Comstock (she is a Republican). That speaks volumes.
A few months ago, I decided to become an Independent. The Republican party as I knew it years ago has changed. This party no longer represents my beliefs as I don’t condone the behavior that I have witnessed in this administration. I have watched Mark Warner as he drilled members of the current administration about possible Russia collusion. I am very impressed with Mr. Warner, and he will always have my vote in the future because I believe that he truly wants the best for this country.
Now to healthcare. John McCain is my personal hero. Although I do have issues with Obamacare, the “skinny bill” was a “disaster”, as Lindsay Graham put it in his speech before the vote. It would have left 16 million without insurance if it was passed into law. It also would have hiked insurance premiums 20%!! If that doesn’t anger every single American out there, I don’t know what will! Thank you so much, Mr. McCain, for voting your conscience. You have no idea how many Americans consider you their hero today.
Here’s the way I see it – if you want to bring down the cost of healthcare, lower the cost of prescription drugs, medical supplies and insurance. DO NOT take it from people who barely have anything (Medicaid)! Specifically, I would love to see caps put on the salaries of the CEOs and other senior management of pharmaceutical and insurance companies.
I used to work for a pharmaceutical company, so I have an idea of how much money these companies pull in and how many “perks” employees receive. I also worked in the medical field as a laboratory technologist. We used to joke about how aluminum foil in a medical supplies catalog cost something like $50 per roll when you could go to Food Lion and get the same thing for $2…I’m not kidding!
The following is a list of the highest earning CEOs in the pharmaceutical industry (per research done by Tracy Stanton of FiercePharma.com) :
- Len Schliefer – CEO of Regeneron, $41.97 million
- Jeffery Leiden – CEO of Vertex Pharmaceuticals, $36.64 million
- Brent Saunders – CEO of Allergan, $36.61 million
- Martine Rothblatt – CEO of United Therapeutics, $33.21 million
- Lamberto Andreotti – CEO of Bristol-Myers Squibb, $27.06 million
- Heather Bresch – CEO of Mylan, $25.82 million
- Kenneth Frazier – CEO of Merck, $25.03 million
- Alex Gorsky – CEO of Johnson & Johnson, $24.99 million
- Robert Hugin – CEO of Celegene, $24.24 million
- Ian Read – Pfizer, $23.28 million
That is just the top ten!
These salaries are ridiculous. No one needs to make this kind of salary when we have American citizens out there that are struggling to make ends meet every single month. Personally, I am on disability because I have had three back surgeries and live in constant pain. I also have fibromyalgia, and just in the past month, I learned that my right knee has almost no cartilage behind the knee cap (due to 25+ years of ballet, jazz and hip hop dancing). I am in physical therapy and have received an injection, but it is highly probable that I will need knee replacement surgery in the near future.
I have Medicare parts A and B. I also bought extra coverage through United Healthcare to help pay the 20% that Medicare doesn’t cover. I am on Savella and Lyrica for pain/fibromyalgia. Six months into this year, I received a notice from United Healthcare that I was in the coverage gap for these medications which means more out-of-pocket costs for me. Well, the cost was too high for me, so I had to drop my Lyrica to one-half of what I was taking during the first part of the year. I now live with increased pain and will have to deal with this until the end of the year.
It angers me that Mitch McConnell and most Republicans put forth a bill to make drastic cuts to Medicaid while doing nothing to reduce the costs of health insurance and pharmaceuticals. There are millions of Americans who are suffering and are barely able to make it month to month while these CEOs are pulling in a salary of $20 to $30 million per year! This has to stop!
Why won’t Congress address the gross mishandling of funds in these industries? How can these executives rake in this kind of money, knowing that there are people out there who are struggling, and sleep at night? Come on, congressmen and women!! Someone get a backbone and take up this issue. John McCain stood up last night, and it was great…will he or someone else have the balls to finally take on these companies?? Mark Warner, will you take the lead on this?
My suggestion for the American people is to vote out those senators and representatives that are on the extreme left and the extreme right. Get moderates in Congress on both sides so they can sit down TOGETHER and hammer out a COMPROMISE (not doing things in secret behind closed doors). I also urge Congress to come up with some kind of law that puts a cap on the salaries of pharmaceutical, insurance and medical supplies executives. Putting this cap in place should redirect the money back to the consumers and drive down these ridiculously high prices. There is no need…EVER…for someone to have a salary of $20 to $30 million PER YEAR when other people are struggling to survive.
A copy of this blog will be sent to my senator and representative. Please feel free to send a copy to your senator and representative as well.
You know, strength is not just physical. Someone can be physically strong but emotionally and mentally weak. I know people who fall in to this category. However, today I am going to talk about emotional and mental strength…something that is not recognized very often. Going through rough times make people beautiful by strengthening their resolve. You know you can rely on these individuals as nothing will bring them down. I have been through it myself, and I have persevered due to the love and help of God. I want you to know that you can persevere as well.
It’s been a while since I have written a blog, and there is good reason for that. I have been dealing with some medical issues again. After receiving some disturbing news yesterday regarding my health, I thought back on everything that I have been through in my life. I truly believe that everything happens for a reason, so I decided to write this blog to let all those who are suffering know that there is always hope.
My health story begins in 1986 when I suddenly came down with an acute case of appendicitis. I was brought into emergency surgery in the middle of the night, and it turned out that my appendix had ruptured. I stayed in the hospital for six days and was told that I was lucky to be alive.
Around 1990, my whole ordeal with adenomyosis began. The severe pain and extremely heavy bleeding lasted for seventeen years before I was finally diagnosed at hysterectomy. You can read my other blogs for more details on my adenomyosis journey.
In 2009, I woke up and was unable to stand as my right leg gave out from underneath me. It turns out that I had a herniated disc in my lower back and a broken vertebrae. This led to my first spinal fusion. Five months after surgery, I learned that two of the screws broke, and I needed a second surgery.
In 2010, I had my second spinal fusion. Sadly, this fusion also failed, and a third surgery was done in 2012.
In between my second and third back surgeries, just by chance, I learned that I had a brain aneurysm. I had no symptoms. The aneurysm was picked up when I had a head CT scan that was needed prior to a CT myelogram for my back. I was stunned! I had surgery, and the doctor placed a coil and stent to block flow to the aneurysm. Thankfully, the aneurysm is now stable.
While recovering from the coil and stent surgery, I found out that my husband was having an affair. I was an emotional wreck as we had been married for almost twenty years. One month before my third back surgery, we separated and he moved out. We are now divorced.
After my third spinal fusion, my left hip began to hurt. I was unable to sleep on my left side at night. This was the beginning of hip bursitis which plagues me to this day. I get occasional cortisone injections to help ease the discomfort.
Although the third surgery resulted in a fusion (yay!), I still live with chronic daily pain in my lower back. The pain still sometimes radiates down my right leg. Not a day goes by now that I’m not is some degree of pain.
In the last year, I began to have severe upper back pain. An MRI showed four bulging discs in my neck along with a couple of pinched nerves. I haven’t had surgery for this yet. I decided to go to a pain management doctor, and I have had many shots – epidural, facet joint, medial branch nerve blocks, etc. These have all given me minimal relief, so my doctor suggested I try radio-frequency. This procedure deadens the nerves that go from the spinal cord to the brain which block the pain signals. I had this procedure done, but it deadened the feeling in the middle of my back while the pain continued in my shoulders and upper neck. I actually am in more pain now than before the procedure. Sigh…
In the meantime, I have had knee, shoulder, and ankle pain, and at times, my knee and hip lock up and give out. Since so many of my joints were hurting, my family doctor suggested I see a rheumatologist. On my first visit with the rheumatologist, they took eight tubes of blood from my arm.
Several weeks later, I had my follow-up. I was shocked to learn that I had a positive ANA test. This test detects autoantibodies which means that there is an autoimmune process of some sort occurring in my body. I couldn’t believe it. So, the doctor ordered more tests, and I had eight more tubes of blood drawn.
Last week, I had yet another follow-up with the rheumatologist. This time, the blood work showed that I had high levels of cardiolipin and beta-2 glycoprotein. This means that I have a clotting disorder! She told me to start taking an aspirin a day for now, and I have to repeat the blood work in several months to see if the levels are still elevated. If they are, I will be diagnosed with antiphospholipid syndrome.
The most shocking thing about antiphospholipid syndrome/high levels of cardiolipin and beta-2 glycoprotein has to do with pregnancy complications. Apparently high levels are associated with a high incidence of miscarriage. While I was married, there were times when I was quite sure I miscarried. Until now, I thought it was a result of adenomyosis, but now I wonder if these high levels played a role also. By the way, I have no children. I wish I had this information thirty years ago! It doesn’t really apply to me now as I have had a hysterectomy. However, these levels put me at an increased risk of stroke or heart attack, so I definitely need to address it, and the rheumatologist needs to keep an eye on it.
My rheumatologist believes that my aches and pains may be due to fibromyalgia, and I have been put on Lyrica. So, for now, I live with chronic pain…pain in my lower back, pain in my upper back, pain in my shoulders, pain in my hip, and sporadic pain in my knees and ankles. I hope the Lyrica will help.
So…I know what it is like to hurt physically. I know what it is like to hurt emotionally. I know. I get it. I’ve been at that place where you think there is no way things are going to work out. I’ve been at that place where I ask God, “Why me?” But I’ve made it this far with God’s help, so I know I will make it in the future. No matter how bad things get, you will make it. Ask God for His hand, and He will guide you. With His help, you can move mountains. Nothing is impossible with God!
Are you interested in learning more about Narcissistic Personality Disorder? Are you looking for ways to effectively deal with a narcissistic individual in your life while enjoying a fictional story? My new book, Blinded by Deception: Life With a Narcissist might be just what you are looking for. This books delves into the life of Nikki Redding and her struggle to survive for twenty eight years in a narcissistic environment. It describes the life events that cause so much confusion and frustration for Nikki early in her life. Once she hits rock bottom, she begins to learn about Narcissistic Personality Disorder, or NPD, and begins her long healing process. Through the support of her friends, both individual and group counseling, and her faith in God, she is able to pull herself out of the depths of distress and into a life full of love, hope, and joy. You will be cheering Nikki on as she travels this long road to her eventual healing! The book is available on Amazon and is available in print and on Kindle. I hope you enjoy it, and I hope that it will bring healing to others who read it!
Click on the link below to go directly to the book on Amazon:
Just a few minutes ago, I had a chat on facebook with a dear friend of mine. She has suffered a majority of her life with a chronic medical condition. She has had a couple of bad days recently as she has had to deal with thoughtless people in regard to her disability. I can relate to her feelings for two reasons. First, I have also suffered from two chronic medical conditions – adenomyosis and a broken back. Second, my sister was born with spina bifida and has been confined to a wheelchair for most of her life.
Thankfully, I have finally resolved my long term fight with adenomyosis after having a hysterectomy. However, during those years, I encountered many people who thought I was faking the pain of this uterine condition. They thought this since the doctors could not find a cause of the pain. Many years later, after finding out that I had adenomyosis, I learned that this uterine condition was and still is extremely difficult to diagnose. In fact most cases are not picked up until hysterectomy. Today, very little is known about adenomyosis, and even less was known when I suffered from the condition.
When I broke my back, I had to deal with people who once again thought the pain was all in my head. These same people saw the x-rays and the doctor reports after surgery which clearly showed a herniated disc, fractured vertebrae, and a bone spur jutting into the nerve supplying my right leg. Interestingly, these same people had never suffered from a chronic medical condition.
My sister has had to deal with many people during her lifetime that had no regard for those with disabilities. Many times, healthy individuals who did not have a disability were parked in handicapped parking spaces. Other times, snow was not cleared from ramps that the disabled must use in order to get into a building. There were occasions where my sister pointed out these issues, but nothing was done to resolve them. In fact, there was a time when my sister and her husband had to threaten to report the incident to the proper authorities before anyone took any action.
I have found in dealing with thoughtless individuals regarding a disabillity that their attitude is rooted in ignorance. Typically these people are very arrogant, think they know everything, and are only concerned about their own well being. They don’t want to be bothered by someone with a disability. I never thought I would have to deal with a broken back, but it happened. Something like that could happen at any time and to anyone. A simple car crash could leave you paralyzed. You never know what will happen in the future. One day you may desperately need the compassion and understanding that the disabled fight for every day. I strongly believe that what comes around goes around. One day, whether in this lifetime or the next, God will call those thoughtless people to be accountable for their actions.
When it comes to someone with a disability, please remember the following:
1. Some disabilities cannot be seen! Not all disabilities are obvious to the general public! Just because a doctor cannot diagnose a condition DOES NOT mean the person is not sick! Usually, science has not caught up with the disorder – this is STILL TRUE today for adenomyosis!
2. Learn to have some sympathy. YOU may need it in the future! Remember – YOU may not enjoy health for your entire life, and you may need help in the future. What comes around goes around.
3. If you are healthy, please don’t be lazy. Don’t park in handicap parking spots if you are not disabled. Those who are disabled desperately need those spots.
4. Please clear snow from handicap ramps. Those in wheelchairs cannot get to their destination without those ramps cleared. Please do not block those ramps when parking. Have some consideration of others around you that just struggle to get from point A to point B.
5. Do not judge others with a disability. If you haven’t walked in their shoes, you have absolutely no idea what you are talking about.
In conclusion, please show some consideration and sympathy for those who struggle on a daily basis with a disability, whether obvious or invisible to the public. Always remember that you may one day need this same consideration if you become ill with a chronic condition.